After 2 treatments, side effects were fatigue, unsteadiness, appetite loss and vomiting. He has now had 3 spinal taps, 2 of those included intrathecal methotrexate injections for the lepto. The worse possible news for us – appears to have developed the rare complication of leptomeningeal carcinomatosis. Unfortunately, his latest brain MRI and abdominal CT scan revealed progression in both his brain and liver. Please see bio for the litany of procedures my husband has undergone over the past two years. Could that little lesion be causing this pain? Not even with MS contin or Hydromorphone. They put him on Divalproex (Depakote) which is also used for severe migraines in hopes it may decrease the pain even though neurologist said his headache is not a migraine.ĭOES ANYONE HAVE ANY RECOMMENDATIONS FOR ME? the headache will not go away. Neurologist said there is no swelling anywhere and to hold off radiating brain met because it is small. A spinal tap revealed PERFECT cerebral spinal fluid (as the neurologist said) and a MRV test(magnetic resonance venography) revealed no blood clots in the brain. MRI revealed no increase in size of 5mm brain lesion. More importantly, his headaches are still there and we even went to the ER because of excruciating pain. Could this all be from the Carboplatin being given as a single agent? Once he began radiation, he began vomiting and everything he eats, changes taste immediately. Since Aplil, he Never had side effects of metallic taste in mouth or vomiting. So radiation began and he was given smaller doses of JUST Carboplatin simultaneously. His oncologist decided to radiate the mediastinum area to decrease chest pain and maybe also his headaches if they came from there also. His headache has been ongoing for almost a month now. Back in May the MRI did not reveal any lesions. They said it is way too small to cause pain. This lead to an MRI which revealed a tiny 5mm lesion on frontal lobe which all his Drs swear is not the cause of his severe headaches (which happen to be in the frontal lobe). Pain meds were increased but headache remained. He had severe chest pain and severe ongoing headaches. After a few rounds of that another CT scan revealed increase in size of one tumor and increase in size of lymph nodes. After 3 Taxol/Carbo rounds, regimen was changed to Abraxane/Carbo. Had many set backs as I mentioned in a previous thread but we managed to decrease all the tumors. He began treatment and tumors were all decreased. My father was diagnosed with NSCLC stage III back in April. Has anyone had a similar experience to this? He is attributing that to chemo side effects and my dad always being dehydrated. The neurologist also said that his blurry vision and dizziness symptoms are not connected to where the few spots are on the brain. I guess the good thing is that whatever they are they are very tiny at this point. If it doesn’t show cancer cells then neurologist said we will just watch them and see what happens. If fluid shows cancer.cells then it’s obviously cancer and we will go from there. They will be doing the spinal tap on Wednesday because he has to be off the blood thinners (he has a blood clot in lung) for two days before procedure. They said it could be cancer due to his history or it could be showing that he had a stroke which he thinks his highly unlikely. Today we met with the neurologist and he said the spots are so tiny that they can’t really tell what they are. The last brain scan was June 4th and it was clear. I posted yesterday that they saw some spots on the most recent brain MRI they did on my father.
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